Liver Strong Shirt
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$20.00
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$20.00 - $25.00
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Liver Strong
Polycystic Liver Disease
Support Organ Donation
#jensliverjourney
Polycystic Liver Disease
Support Organ Donation
#jensliverjourney
I was diagnosed with Polycystic Kidney Disease in 2008 and Polycystic Liver Disease 10 years later. This past Fall my liver flared up out of nowhere when I woke up in extreme pain. My abdomen started filling with Ascites (fluid). After a couple of months with no answers as to what was going on, my GYN/OB doctor got me in with the transplant team at Northwestern Hospital in Chicago. By then I lost 20-40 lbs and looked like I was 10 months pregnant but a skeleton otherwise. I started getting weekly paracentesis to get the fluid off which has helped. I need a liver transplant and a kidney transplant within 5 years of the liver transplant. My Meld score which is what determines how quickly you get moved up on the transplant list is pretty low so I have not been added to the transplant list yet. My transplant team would like me to have a liver donor, as that is my better chance right now.
I made this shirt for my family to support me on my journey and others also wanted one and suggested using money raised towards out of pocket cost or a donation to a foundation. Proceeds from the purchase of these shirts will go towards travel fees for anyone coming to Chicago for a liver evaluation to be my living donor.
I made this shirt for my family to support me on my journey and others also wanted one and suggested using money raised towards out of pocket cost or a donation to a foundation. Proceeds from the purchase of these shirts will go towards travel fees for anyone coming to Chicago for a liver evaluation to be my living donor.